Wednesday, July 31, 2013

New Beginning

I'm in the beginning of a migration. I've decided that updating more than one blog just isn't my style anymore, so I'm switching back to keeping it all in one place. I'm not going to delete what I've already posted on Living Up, but I'm going to officially move over and make my "family blog" the catch all blog for everything. I'll probably copy some of the best stuff from here and repost it over at Brown Scribbles. Here's my that address if you haven't been there before...

brownscribbles.blogspot.com

So if you're looking for the latest updates to "Deeming Waiver Checklist" that's where they'll be. Just follow us on over and we'll try to keep up some good work. ;-)

Tuesday, March 19, 2013

Walking for Autism Awareness


My family and I are participating in the Georgia chapter Walk Now for Autism Speaks this May. We are so lucky to have the resources we have but more research means even better resources for our little boy and for the countless other little boys and girls who struggle in the same way. The icon below will take you to Alexander's individual donation page. Please take a moment to consider donating in support of his walk. Any amount you can offer will be appreciated! 

Friday, February 22, 2013

Pink Lemonade Cake

I've been wanting to try this recipe since I saw it on a BHG magazine cover last April. It's supposed to be a "Spring/Summertime" type cake but since it's pink, I decided to make it for Valentines Day/my aunt Erika's birthday.

I followed the directions almost to the letter and I think it turned out pretty well. The frosting was kind of melting so I put the whole thing in the fridge until it was time to serve. I'm not a big fan of marshmallow personally so I would say I've had better frosting in my life but most everyone else seemed to think it was great. Mammaw was quite enjoying dipping strawberries in the leftover creamy goodness.





Our party was small and about half of us were dieting and only had tiny slivers. Nevertheless...it seemed to be a hit.

Monday, January 14, 2013

For the queue

To disgruntled person in Disney World line,

Standing in this line is difficult for you, isn't it? The crowds, and the noise, and the physical strain of standing in one place for a while can be overwhelming. Makes it hard to control your outbursts, doesn't it?

Now, I want you to think about that irritation you’re feeling. As I've said, it’s perfectly understandable. But I want you to think about it, really embrace it - and now I want you to imagine that you’re 5 years old. I bet waiting in this line just got even more trying for you, didn't it?

Now imagine you also have a sensory processing disorder. This means that every sensation is multiplied. Without on-going therapy, even simple sights and sounds that people usually enjoy can occasionally send you into a frenzy or render you catatonic. So imagine what happens with an overload of unpleasant stimuli.

Now I want you to imagine that you have Autism. Along with a list of stumbling blocks as long as my arm, this means communicating is especially challenging, if not impossible. It’s not your fault, but people can’t always read your mind and sometimes crying or throwing a tantrum is the only way you feel you can be understood. You don’t mean to hurt or annoy the people around you but you can’t talk and sometimes it’s just all too much. Your parents and other family and friends watch you very carefully, and try their hardest to maintain the balance of stimulus and rest so you can have something like a normal life experience. All you want to do is have fun at Disney World, because after all, you’re 5, but sometimes you need people to cut you a break.

Now you can be you again. Maybe this is a relief to you, maybe it’s not. But you get to choose. You can let the strain get to you, vent your aggravation on passersby. Or you can switch gears and choose to be happy in the “happiest place on earth.” Maybe take a cue from my special needs family and take a rest break if you’re feeling grumpy. It’s really all the same to me. I’ll continue to push or accommodate my children as I think best. It just might help you to remember, you’re not alone in the world - my son has certainly experienced frustration, just like you.

Best wishes,
Amy B.



A little note I composed after a little research into the Disney Guest Assistance Cards and the snide remarks some people have faced when using them. I guess this could really be handed out to any "snide remarker" in a line whether you were using a card or not. Just things I wish I could say to people who don't get it.